Tuesday, July 30, 2013

Featured Blogger: Kristy Of
"Life in a Bubble of Fun"


Today's Featured Blogger is Kristy from Life in a Bubble of Fun. Kristy's 2-year-old son has cystic fibrosis and she blogs about the ups and downs of their life together. Kristy and Cadel have certainly had some rough challenges come their way, and her blog shows a realistic picture of some of the toughest things about parenting a CF child, but her courage and determination to create a happy life for her children is inspiring!


First, tell me a little bit about yourself and your child with CF!

My name is Kristy, I am a stay-at-home-Mum married with three children aged 6, 5 and 2.
Our youngest child has CF. Cadel is a bubbly little guy that doesn't let anything hold him back. He is definitely an old soul who has so much to teach me and our family. Cadel's journey with CF has bought out new discoveries in myself that I never knew hid deep down inside. I have discovered I love to write, hence the blogging and I would now like to study to become a nurse, specialising in paediatric ICU nursing.

How old was your child when they were diagnosed with CF? What led to their diagnosis?

Right from the birth of Cadel my mother's intuition was telling me that something wasn't quite right. When born Cadel had meconiuim aspiration and spent 13 days in the Special Care Nursery, 12 of those on oxygen. He developed a nasty cough and was referred down to the Respiratory specialists at the closest major Children's Hospital. While at home Cadel was losing weight and looked pale and just generally unwell. 

The specialists at the Children's hospital sent him for a sweat test, this was done on Friday and on the following Tuesday we got a call saying they would like to see us at the hospital and to bring an overnight bag.
So off we went to sit in an office to be told the devastating news that our tiny baby had Cystic Fibrosis and was unwell and needed to be admitted straight away and put on IV antibiotics. A crazy whirlwind of education and processing started. Cadel spent his first Christmas in hospital and has since had 23 admissions ranging anywhere from 1 night to up to 52 days at a time. He has been unusually unwell for his age, with numerous chest infections and the diagnosis is not looking good. Cadel has CF related liver disease as well, he spent over a 1/3 of 2012 in hospital on IV antibiotics fighting chest infections and we were given the devastating news in September 2012 that he is most likely not to make it to the age of 10.

What kind of effect has CF had on your life and your family's lives?

CF has had a major impact on our lives as our son has been so unwell for his age. So we have lost a lot of time and events with the other children as Cadel has been admitted a lot. But in saying that my husband and I upon learning our son's diagnosis took on the quote from an adult CF sufferer that went along the lines of " I don't live with CF. CF lives with me." We try and not let it rule our lives and fit it into our lives. It has it days when we feel isolated and miss out on doing certain things because of CF but we have met some amazing people in the CF community who are now great friends and we have CF to thank for that.

When did you start blogging? What led you to start blogging?

I started blogging around April 2013. It all started as we were part of a Facebook group that were doing some CF awareness so for the month of march we did the A to Z of Cystic Fibrosis. It was great to tell our family and friends on Facebook about what each letter meant in reference to CF in our lives. I really enjoyed it and people encouraged me to start blogging as they thought I had a way with words. It was easier to write for me then it is to talk to people so it was a way to spread awareness for CF and tell our story.

What is your favorite post you've ever written?

My favourite post would have to be Don't call me super mum. I really enjoyed writing it and it came straight from my heart and opened up my world for all to read and judge as I was telling people about how I really felt and what I had wanted to say for a really long time.

What are a few of YOUR favorite CF blogs? (They don't have to be on the blogroll.)
I love organising blogs! I would love to have a more organised house and life and try to do many small things to make this the case so some of my favourite blogs would have to be

mypigeonpair.com
theorganisedhousewife.com.au
iheartorganizing.blogspot.com.au

What would be your #1 piece of advice to other parents with CF children?

Have a good support base and connect with other parents online and in anyway you can. It helps to talk to others who share your pain, triumphs and worries.

8 comments:

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  2. My life is beautiful thanks to you, Mein Helfer. Lord Jesus in my life as a candle light in the darkness. You showed me the meaning of faith with your words. I know that even when I cried all day thinking about how to recover, you were not sleeping, you were dear to me. I contacted the herbal center Dr Itua, who lived in West Africa. A friend of mine here in Hamburg is also from Africa. She told me about African herbs but I was nervous. I am very afraid when it comes to Africa because I heard many terrible things about them because of my Christianity. god for direction, take a bold step and get in touch with him in the email and then move to WhatsApp, he asked me if I can come for treatment or I want a delivery, I told him I wanted to know him I buy ticket in 2 ways to Africa To meet Dr. Itua, I went there and I was speechless from the people I saw there. Patent, sick people. Itua is a god sent to the world, I told my pastor about what I am doing, Pastor Bill Scheer. We have a real battle beautifully with Spirit and Flesh. Adoration that same night. He prayed for me and asked me to lead. I spent 2 weeks and 2 days in Africa at Dr Itua Herbal Home. After the treatment, he asked me to meet his nurse for the HIV test when I did it. It was negative, I asked my friend to take me to another nearby hospital when I arrived, it was negative. I was overwhite with the result, but happy inside of me. We went with Dr. Itua, I thank him but I explain that I do not have enough to show him my appreciation, that he understands my situation, but I promise that he will testify about his good work. Thank God for my dear friend, Emma, I know I could be reading this now, I want to thank you. And many thanks to Dr. Itua Herbal Center. He gave me his calendar that I put on my wall in my house. Dr. Itua can also cure the following diseases ... Cancer, HIV, Herpes, Hepatitis B, Inflammatory Liver, Diabetis, Bladder Cancer,Colorectal Cancer,Breast Cancer,Kidney Cancer,Leukemia,Lun,Fribroid,Parkinson's disease,Inflammatory bowel disease ,Fibromyalgia, recover your ex. You can contact him by email or whatsapp, @ .. drituaherbalcenter@gmail.com, phone number .. + 2348149277967 .. He is a good doctor, talk to him kindly. I'm sure he will also listen to you.

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  4. My name is ethan micheal ,am from USA.i want to share my wonderful testimony on how i got back my husband back, who i sworn ever to be with until when he left me to another woman for no reason and i try to make things work for both of us yet things where getting worse and i love him so much and there is nothing i could do to get my husband back until i met a testimony share by a woman called Stella tea from Australia on the internet talking about a powerful spell caster who brought her husband back within 24hours and i decide to give it a try and to my greatest surprise he also did it for me just as he did for Stella and i have a lot of people complaining of fake spell caster but this one i met was a real spell caster who help me to solve my problem i have no solution to,i introduce many of my best friends that have a similar problems,and their problem were solve with the great help of PRIEST WISDOM .who help them to get back their lovers within 24 hours.i am so happy that my husband is back to me again,and the most surprising thing is that our love is very strong,every day is happiness and joy. and there is nothing like been with the man you love.i am so happy my love is back to me with the help of PRIEST WISDOM if you have similar problem i will advice you to contact him ,he is there to help you and put a smile on your face as he did to me and others.contact email supernaturalspell@yahoo.COM or supernaturalspell1@gmail.com you can call /whatsapp him through is mobile number +2348124644470

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  5. Unfortunately there are a lot of AIDS/Herpes denials on Herbal cures still out there. I did research on them after I was tested HIV/Herpes positive I was so worried am I going to die soon. I continue my search again on herbal remedy for Std, then I found lots of testimony on how Dr Itua Herbal Medicine Cured HIV/Aids, Herpes Virus,Copd, Hepatitis,Shingles, Als,Diabetes,Epilepsy,Infertility, On websites sharing their testimonies, which made much more sense to me. All the authors pronounce Dr Itua As a man with Good Heart, I pick interest in their testimonies and I contact him about my situation then he gave me procedure how it works, I proceed after one week he courier his Herbal Medicine to me and instruct me on how to drink it for two weeks to cure. I receive His Herbal Medicine so I drank it for two weeks as I was told then after 2 days I go for a test I found out I was cured from HIV/Aids & Herpes Virus, I pay homage to him 2 months ago to his country to celebrate with him on his African festival which he told me it usually happens every year. I know there are lots of (HIV)/Aids&Herpes Virus denials of Herbal Remedy movement the same few doctors and they represent a very small faction of the community. I could have died because I refused Natural Herbs Cures for so long, but luckily, by the grace of God I am alive to tell my story. Contact Info...Whatsapp Number...+2348149277967,Email...drituaherbalcenter@gmail.com/My Instagram Username...avat5634 Just in case you need someone to talk with.

    ReplyDelete
  6. hello everyone i have been having sexual battles with my wife in my marriage because of my small penis and it was really so embarrassing imagine a grown up man of 39 years old having a small dick…i could not satisfy her and she threatened to cheat on me if i do not find a way..i searched for cure and results but none of them avail..i even used online pills,vaccines,drugs,herbal herbs but still no result so i was about going penis Surgery when i read about this great herbalist called Dr harry ..i quickly message him on his website link https://drharryherbaltempl.wixsite.com/solutiontemple and he got back to me within 30 mins and told me all i need to do ,,i followed all his instructions and he sent down his herbal cream through UPS SERVICE to me and gave me instruction on how to apply it and within two weeks i was Beginning to feel myself …i now measure 10.5 inches long in erection and 8.0 girth fat …my wife is so proud and happy with me now..All thanks to DR HARRY for saving my marriage ..i am 100% grateful to you sir .NOTE he also have herbal remedies to problems like
    1.LOW SPERM COUNT
    2.PREMATURE EJACULATION
    3.ERECTILE DYSFUNCTION
    4.DIABETES CURE
    5.HIV/AIDS CURE
    6.CANCER CURE
    7.GENITAL HERPES CURE
    8.STROKE
    9.HEART FAILURE
    so if you are out there and need such help please contact him on drharrysolution@gmail.com or visit his website http://drharryherbaltempl.wixsite.com/solutiontemple you can Whatsapp him on +2349036417079 thanks so much for enlarging my penis

    ReplyDelete