Thursday, November 6, 2014

Anything Is Possible: A CF Patient Interviews Her Parents About Life, Family, and Raising A Child With CF

I was recently contacted by Erin Evans, a 31-year-old CF patient who works for the Cystic Fibrosis Lifestyle Foundation. Erin sent me a blog post that she'd written for the CFLF blog, in which she shared an interview she'd done with her parents about what it was like to raise a child with cystic fibrosis. I thought it was such a neat interview and something that would resonate with both CF patients and parents of CF kids. Erin has graciously allowed me to share part of the interview here today—a link for the full interview is at the bottom.

Last week I drove out to my parent’s house, the house that I grew up in, and sat down with them, at the table where we'd had hundreds and hundreds of dinners and conversations as a family, and interviewed them about what it was like to have a child with CF. Even though I had always felt like my family was very open, and not afraid to talk about anything, it was really the first time we'd had a conversation about my CF, as adults. 

I expected to learn things I hadn’t known before, all the things that my bad memory had lost along the way, but what followed was an almost two hour conversation about what it was like in those early years when so much was still unknown. After spending hours listening to the interview over and over again, transcribing it, picking it apart, and cutting it down to a reasonable size, I felt like I finally had the missing pieces to the story I'd been telling myself for years. 

See full interview here!

36 comments:

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  19. hello everyone i am Marcus Fransson from Switzerland i was having 3 problems 1.small penis 2.low sperm count 3.financial Breakdown ..i have been working so hard for so long in my life but all my efforts always ends in pain and sorrow,,my wife divorced me because of my small penis length which was 3 inches when erected ,i got sacked from work and my business went down and things where really falling apart for me until with my cousin about my problems and my cousin MARIAN GEORGE who stays in new York told me how this great herbal doctor HARRY helped her got pregnant and enlarge her husband penis so i quickly ask for his contact and she gave me his website link https://drharryherbaltempl.wixsite.com/solutiontemple and i contacted him and he gave me a feed back and told me all i needed to do and i did it ,,he prepared a penis enlargement cream for me and Casted a good luck and prosperity spell for me and within two weeks i got 11 inches penis size with a very large round and also i did the spell and within a month my business increased and even my old company called me back to resume my office ..Right now i am one of the happiest,rich,thankful and grateful men in the whole world because i would not have imagined what i would have done without him...my wife gets scared anytime i ask for sex,financially stable now and happy ..so if you are out there you want his help do not hesitate to contact him via email drharrysolution@gmail.com whatsapp him on +2349036417079 or website https://drharryherbaltempl.wixsite.com/solutiontemple THANKS

    ReplyDelete
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    ReplyDelete
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  23. Dr. Miracle Herbal Medicine Is A Good Remedy For Herpes, I Was A carrier of Herpes and I saw a testimony on how Dr. Miracle, cure Herpes, I decided to contact him, I contacted him and he guided me. I asked him for solutions and he started the remedies for my health. After he finish casting the spell, he told me to go for check up, could you believe that i was confirm herpes negative after the test, and i went to a different hospital and it was also negative, i am so happy today because i'm free from herpes disease with the help of Dr. Miracle. Thank God, now everything is fine, I'm cured by Dr.Miracle,herbal medicine, I'm very thankful to Dr. Miracle, Reach Him On (MiracleSpellHome@yahoo.com) Or WhatApp Him Or Call: +39(349)549- 4143,,, DOCTOR MIRACLE CAN AS WELL CURE THE FOLLOWING DISEASE:- (1). HERPES( 2). HIV/AIDS (3). CANCER ALL KINDS (4). Hepatitis A,B,C (5)Pregnant (6) Penis Enlargement ,,,,

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  28. WHAT A GREAT MIRACLE THAT I HAVE EVER SEE IN MY LIFE. My names are Clara David I’m a citizen of USA, My younger sister was sicking of
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  29. I had struggle relationship with my husband in the past which led to divorce with my first husband. After i and my ex husband got divorced, i had another chance to re-marry again and just 5 years of my second marriage there was another divorce which almost killed me emotionally. I stayed for another two years been unmarried and a single mother. Honestly I wasn't really happy it because every woman need a man in her life, there was a time i saw my first husbands photo and i realized how much i loved him and have missed him. I tried to get to him but i was told that he moved on with his life and we may never been together again. I wept bitterly that night thinking i have lost the man that i have had so much love for. I asked for advise on what to do and a friend of mine gave me a contact of Osasu Solution Temple, i consulted him and to his very best with his powerful spells he helped me with a Reunion Marriage Love Spell to returned my ex husband back to me, in just 9 days i had enchanter with a spiritual reunion prayers with priest Osasu everything turn around for good in my life, I am now happily living with my first husband again and sort out the divorce issues. with the help of Osasu temple, his a man of wisdom and care. Thanks and i appreciate all the help you have rendered to get my ex husband back into my life again. I testify here today that Osasu temple is powerful it can resolve all problem in a broken relationship with love once. contact him for solutions to any kind of relationship problem. Email....(drosasu25@gmail.com) You can also call him or add him on WhatsApp +2347064365391

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  30. I had struggle relationship with my husband in the past which led to divorce with my first husband. After i and my ex husband got divorced, i had another chance to re-marry again and just 5 years of my second marriage there was another divorce which almost killed me emotionally. I stayed for another two years been unmarried and a single mother. Honestly I wasn't really happy it because every woman need a man in her life, there was a time i saw my first husbands photo and i realized how much i loved him and have missed him. I tried to get to him but i was told that he moved on with his life and we may never been together again. I wept bitterly that night thinking i have lost the man that i have had so much love for. I asked for advise on what to do and a friend of mine gave me a contact of Osasu Solution Temple, i consulted him and to his very best with his powerful spells he helped me with a Reunion Marriage Love Spell to returned my ex husband back to me, in just 9 days i had enchanter with a spiritual reunion prayers with priest Osasu everything turn around for good in my life, I am now happily living with my first husband again and sort out the divorce issues. with the help of Osasu temple, his a man of wisdom and care. Thanks and i appreciate all the help you have rendered to get my ex husband back into my life again. I testify here today that Osasu temple is powerful it can resolve all problem in a broken relationship with love once. contact him for solutions to any kind of relationship problem. Email....(drosasu25@gmail.com) You can also call him or add him on WhatsApp +2347064365391

    ReplyDelete
  31. I had struggle relationship with my husband in the past which led to divorce with my first husband. After i and my ex husband got divorced, i had another chance to re-marry again and just 5 years of my second marriage there was another divorce which almost killed me emotionally. I stayed for another two years been unmarried and a single mother. Honestly I wasn't really happy it because every woman need a man in her life, there was a time i saw my first husbands photo and i realized how much i loved him and have missed him. I tried to get to him but i was told that he moved on with his life and we may never been together again. I wept bitterly that night thinking i have lost the man that i have had so much love for. I asked for advise on what to do and a friend of mine gave me a contact of Osasu Solution Temple, i consulted him and to his very best with his powerful spells he helped me with a Reunion Marriage Love Spell to returned my ex husband back to me, in just 9 days i had enchanter with a spiritual reunion prayers with priest Osasu everything turn around for good in my life, I am now happily living with my first husband again and sort out the divorce issues. with the help of Osasu temple, his a man of wisdom and care. Thanks and i appreciate all the help you have rendered to get my ex husband back into my life again. I testify here today that Osasu temple is powerful it can resolve all problem in a broken relationship with love once. contact him for solutions to any kind of relationship problem. Email....(drosasu25@gmail.com) You can also call him or add him on WhatsApp +2347064365391

    ReplyDelete
  32. I had struggle relationship with my husband in the past which led to divorce with my first husband. After i and my ex husband got divorced, i had another chance to re-marry again and just 5 years of my second marriage there was another divorce which almost killed me emotionally. I stayed for another two years been unmarried and a single mother. Honestly I wasn't really happy it because every woman need a man in her life, there was a time i saw my first husbands photo and i realized how much i loved him and have missed him. I tried to get to him but i was told that he moved on with his life and we may never been together again. I wept bitterly that night thinking i have lost the man that i have had so much love for. I asked for advise on what to do and a friend of mine gave me a contact of Osasu Solution Temple, i consulted him and to his very best with his powerful spells he helped me with a Reunion Marriage Love Spell to returned my ex husband back to me, in just 9 days i had enchanter with a spiritual reunion prayers with priest Osasu everything turn around for good in my life, I am now happily living with my first husband again and sort out the divorce issues. with the help of Osasu temple, his a man of wisdom and care. Thanks and i appreciate all the help you have rendered to get my ex husband back into my life again. I testify here today that Osasu temple is powerful it can resolve all problem in a broken relationship with love once. contact him for solutions to any kind of relationship problem. Email....(drosasu25@gmail.com) You can also call him or add him on WhatsApp +2347064365391

    ReplyDelete
  33. My name is Erica J Bradley, l want to tell the world about how l got cured from Herpes by Dr. Wilson. I was infected with Herpes disease for so many
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    ReplyDelete