Thursday, November 6, 2014

Anything Is Possible: A CF Patient Interviews Her Parents About Life, Family, and Raising A Child With CF

I was recently contacted by Erin Evans, a 31-year-old CF patient who works for the Cystic Fibrosis Lifestyle Foundation. Erin sent me a blog post that she'd written for the CFLF blog, in which she shared an interview she'd done with her parents about what it was like to raise a child with cystic fibrosis. I thought it was such a neat interview and something that would resonate with both CF patients and parents of CF kids. Erin has graciously allowed me to share part of the interview here today—a link for the full interview is at the bottom.

Last week I drove out to my parent’s house, the house that I grew up in, and sat down with them, at the table where we'd had hundreds and hundreds of dinners and conversations as a family, and interviewed them about what it was like to have a child with CF. Even though I had always felt like my family was very open, and not afraid to talk about anything, it was really the first time we'd had a conversation about my CF, as adults. 

I expected to learn things I hadn’t known before, all the things that my bad memory had lost along the way, but what followed was an almost two hour conversation about what it was like in those early years when so much was still unknown. After spending hours listening to the interview over and over again, transcribing it, picking it apart, and cutting it down to a reasonable size, I felt like I finally had the missing pieces to the story I'd been telling myself for years. 

See full interview here!

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  21. I had struggle relationship with my husband in the past which led to divorce with my first husband. After i and my ex husband got divorced, i had another chance to re-marry again and just 5 years of my second marriage there was another divorce which almost killed me emotionally. I stayed for another two years been unmarried and a single mother. Honestly I wasn't really happy it because every woman need a man in her life, there was a time i saw my first husbands photo and i realized how much i loved him and have missed him. I tried to get to him but i was told that he moved on with his life and we may never been together again. I wept bitterly that night thinking i have lost the man that i have had so much love for. I asked for advise on what to do and a friend of mine gave me a contact of Osasu Solution Temple, i consulted him and to his very best with his powerful spells he helped me with a Reunion Marriage Love Spell to returned my ex husband back to me, in just 9 days i had enchanter with a spiritual reunion prayers with priest Osasu everything turn around for good in my life, I am now happily living with my first husband again and sort out the divorce issues. with the help of Osasu temple, his a man of wisdom and care. Thanks and i appreciate all the help you have rendered to get my ex husband back into my life again. I testify here today that Osasu temple is powerful it can resolve all problem in a broken relationship with love once. contact him for solutions to any kind of relationship problem. Email....(drosasu25@gmail.com) You can also call him or add him on WhatsApp +2347064365391

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  22. I had struggle relationship with my husband in the past which led to divorce with my first husband. After i and my ex husband got divorced, i had another chance to re-marry again and just 5 years of my second marriage there was another divorce which almost killed me emotionally. I stayed for another two years been unmarried and a single mother. Honestly I wasn't really happy it because every woman need a man in her life, there was a time i saw my first husbands photo and i realized how much i loved him and have missed him. I tried to get to him but i was told that he moved on with his life and we may never been together again. I wept bitterly that night thinking i have lost the man that i have had so much love for. I asked for advise on what to do and a friend of mine gave me a contact of Osasu Solution Temple, i consulted him and to his very best with his powerful spells he helped me with a Reunion Marriage Love Spell to returned my ex husband back to me, in just 9 days i had enchanter with a spiritual reunion prayers with priest Osasu everything turn around for good in my life, I am now happily living with my first husband again and sort out the divorce issues. with the help of Osasu temple, his a man of wisdom and care. Thanks and i appreciate all the help you have rendered to get my ex husband back into my life again. I testify here today that Osasu temple is powerful it can resolve all problem in a broken relationship with love once. contact him for solutions to any kind of relationship problem. Email....(drosasu25@gmail.com) You can also call him or add him on WhatsApp +2347064365391

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  23. My name is Erica J Bradley, l want to tell the world about how l got cured from Herpes by Dr. Wilson. I was infected with Herpes disease for so many
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    and his WhatsApp : +2348136219493, and immediately the Dr. sent me a herbal medicine and told me to take the medicine morning and night and I
    did and immediately the Herpes DISAPPEARED and I was cured from Herpes disease.. so if you are infected with Herpes, any diseases such as cancer, kidney, HIV or Hepatitis Virus then Dr. Wilson is the right man to contact for the cure. so kindly contact him now on his email: (drwilsonherbalcure@gmail.com) or His WhatsApp number: +2348136219493.... once again, Dr. Wilson thank you very much for what you
    did for me am very grateful... God bless you sir.!

    ReplyDelete
  24. I can’t believe this is really true I never believe there is cure to this hsv 2 because all the hospital have told me there is no cure to it, few months ago I saw this man email DR.AZIEGBE on internet from a testimony share by someone who he help with his herbal cure I contact his email and ask for his help also, that is how he inform me about the cure process and this man sent me a herbal medicine which I took according to the way he instructed for 2 week I can’t believe when I go for test my result come out negative i am so happy to share this to the world there is real cure to herpes you can also contact DR.AZIEGBE through his email now DRAZIEGBE1SPELLHOME@GMAIL. COM and also WhatsApp him +2349035465208. or my assistant whatsApp me +1 (601) 452-8622 or email: JAMESAVA0001@GMAIL. COM...
    He also have herbs medicine to cured the following diseases;
    Diabetes, Lupus, HPV, Gout, Hepatitis A,B, Infertility, HIV/AIDS, CANCER

    ReplyDelete
  25. I have long felt a special connection with herbal medicine. First, it's natural, Charlie attended the same small college in Southern California - Claremont Men's College - although he dropped out of school to enroll in the Julliard School of Performing Arts in New York. York. Had he been to Claremont, he would have been senior the year I started there; I often thought that was the reason he was gone when he discovered that I had herpes. So, my life was lonely, all day, I could not stand the pain of the outbreak, and then Tasha introduced me to Dr. Itua who uses her herbal medicines to cure her two weeks of consumption. I place an order for him and he hands it to my post office, then I pick it up and use it for two weeks. All my wound is completely healed no more epidemic. I tell you honestly that this man is a great man, I trust him Herbal medicine so much that I share this to show my gratitude and also to let sick people know that there is hope with Dr. Itua. Herbal Phytotherapy.Dr Itua Contact Email.drituaherbalcenter@gmail.com/ info@drituaherbalcenter.com. Whatsapp ... 2348149277967
    He cures.
    Herpes,
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    H.P.V TYPE 1 TYPE 2 TYPE 3 AND TYPE 4. TYPE 5.
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    Cervical Cancer
    Colo-rectal Cancer
    Blood Cancer
    SYPHILIS.
    Diabetes
    Liver / Inflammatory kidney
    Epilepsy

    ReplyDelete
  26. I has suffered for Human papillomavirus HPV) for 2years, I was given some tablets at the hospital but I refused to take it, They said I have to be on it for life so I don't want take a drugs everyday for life. No point in taking medicine everyday when u won't get cure from it and I was advice to seek for natural herbal cure, after some time I found dr onokun is the most trustful herbalist that have herbs to cure wicked symptom's,I emailed dr onokun, for 2weeks been his patient he cured my (HPV) with his herbal. I only used his natural herbs for two weeks it was 100% cure. I'm not (HPV) patient anymore. I'm happy about it i finally got cured out of this mess been in my body for 2years. I also recommend you if you're living with (HPV) or herpes symptoms i also want you to be free contact dr onokun with the email attach to my post. dronokunherbalcure@gmail.com

    ReplyDelete
  27. Healthcare Technology Magazine is one of the best printed healthcare magazine which features the latest technology trends used in the healthcare industry. It unfolds the technological advancements with the help of insights from proficient CIOs, CXOs and healthcare professionals.

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  28. There is a safe & effective Natural Herbal Medicine. For Total Cure Call    +2349010754824,  or email him   drrealakhigbe@gmail.com       For an Appointment with (Dr.) AKHIGBE contact him. Treatment with Natural Herbal Cure. For:Dengue Fever, Malaria. Painful or Irregular Menstruation. HIV/Aids. Diabetics. Vaginal Infections. Vaginal Discharge. Itching Of the Private Part. Breast Infection. Discharge from Breast. Breast Pain & Itching. Lower Abdominal Pain. No Periods or Periods Suddenly Stop. Women Sexual Problems. High Blood Pressure Chronic Disease. Pain during Sex inside the Pelvis. Pain during Urination. Pelvic Inflammatory Disease, (PID). Dripping Of Sperm from the Vagina As Well As for Low sperm count. Parkinson disease. Obesity, Lupus.  Cancer.  Tuberculosis.  Zero sperm count. Bacteria Diarrhea.Herpatitis A&B, Rabies. Asthma.  Quick Ejaculation. Gallstone, Cystic Fibrosis, Esquizofrenia, Cirrhosis,  Premature Ejaculation. Herpes. Joint Pain. Stroke. Coeliac Disease, Weak Erection.  Erysipelas, Thyroid, Discharge from Penis. HPV.  Hepatitis A and B. STD. Staphylococcus + Gonorrhea + Syphilis. Heart Disease.  Pile-Hemorrhoid.rheumatism, thyroid, Autism, Penis enlargement,  Waist & Back Pain.  Male Infertility and Female Infertility. Etc. Take Action Now. contact him & Order for your Natural Herbal Medicine:  +2349010754824  and email him    drrealakhigbe@gmail.com    Note For an Appointment with (Dr.) AKHIGBE.I suffered in Cancer for a year and three months dieing in pain and full of heart break. One day I was searching through the internet and I came across a testimony herpes cure by doctor Akhigbe. So I contact him to try my luck, we talk and he send me the medicine through courier service and with instructions on how to be drinking it.To my greatest surprise drinking the herbal medicine within three weeks I got the changes and I was cure totally. I don't really know how it happen but there is power in Dr Akhigbe herbal medicine. He is a good herbalist doctor.

    ReplyDelete
  29. I'm 61 years old, I contracted hpv in 2011' I has be taking lot treatment for it and embarrassedsome months ago the wart stated coming out seriously, I used lot recommendation because there was lot warts around my anus and was so . but today I'm totally happy I got the virus eliminated by using natural treatment from Dr Onokun herbal center after his treatment I got cured. all the warts went away' seriously believed Dr Onokun he have the cure for human papillomavirus because he has eliminated hpv been in my body since 2011, Dr Onokun make it possible for me. Here is Dr Onokun email to reach him: Dronokunherbalcure@gmail.com  he is welled capable of curing terrible diseases.      

    ReplyDelete
  30. To anyone out there who thinks love spells don't work, I’m here to tell you that Lord Zakuza love spell is the best and most powerful. I am a wealthy man who has lots of assets and possessions but I have difficulty with women. Whenever I try to settle down with any, we end up breaking up and I had no idea of why I was going through such an experience in my relationship. It was so worrying that I couldn’t be myself anymore and I started searching for help everywhere even at my place of work. I was going through my work activities online and I came across a testimony of a lady called ( Febe Anouk ) regarding how Lord Zakuza helped her to restore her relationship with his love spell, I had to give it a try because I needed my Ex lover back that I love so much. I visited Lord Zakuza website online and I told him everything I was going through. Lord Zakuza consoled me and promised to help me out with my situation by preparing a love spell for me. I followed the instructions given by him to me and within 48 hours, my Ex lover came looking for me and pleaded for forgiveness. Since I came in contact with Lord Zakuza, things have changed for good in my life and right now, I am married with two beautiful kids and my home is blessed. All thanks to Lord Zakuza I am forever thankful to you. Visit his website for any help via lordzakuzaspells.com or WhatsApp him on +1 740-573-9483. Try him and your life will be blessed.

    ReplyDelete
  31. Good day to you all.. I'm here to share my experience to everybody all around the world because I know that someone out there needs this today. I've been with my girlfriend for 3 years and everything was fine with us that we don't have to fight or quarrel for anything . My girlfriend got a new job and after 2 months of her new job, I noticed some changes in her. Few weeks before my birthday, my girlfriend broke up with me for another man. I never expected such from her. I was in severe pain and needed help urgently. I searched for help online and found Lord Zakuza who is a spell caster. I told him everything I was going through and he understood me well. He told me that he will prepare a love spell for me that will get my girlfriend back within 48 hours and he explained to me how it was going to be done and I agreed. He prepared the love spell for me and my girlfriend returned back to me begging me for forgiveness within 48 hours. I was shocked and happy and I accepted her back.. We are back together and everything is going fine. I want to thank Lord Zakuza for his help by sharing this testimony online for other people to find help too in any area of their lives. Get in touch with him with the below details. For he's good at what he does.

    WhatsApp/Call/Text +1 (740) 573-9483.
    Email: Lordzakuza7@gmail.com

    ReplyDelete
  32. This comment has been removed by the author.

    ReplyDelete
  33. I am amazed by Ohikhobo's remedy. I Have had herpes for over 6 years with frequent outbreaks. Sometimes I average 2-3 times per month. Before one breakout could end, the next would begin. Nothing has helped me. I came online in search for a possible way to see how I can fight this virus so I found Ohikhobo here online after seeing a lot of testimonies of how he cured herpes and other diseases with natural herbs so I decided to give it a try I only took his remedy for two weeks and I was completely cured. I recommend Ohikhobo's remedy to anyone suffering from herpes that wants to be completely cured too.

    Email: drohikhoboherbalcenter @ gmail com

    WhatsApp +1740-231-2427

    ReplyDelete
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  35. I've been a carpenter for the past 18 years and playing the Lottery has always been my thing and my Wife supports me but winning big funds is always an issue. My Wife is quite good at surfing the internet and she came across an AD of DR AMBER who helps people that believes in his work. My Wife & I emailed him for help to win the Lottery and guess what!!! He did a spell prayer and gave us some digits to play the Lottery. We did as he instructed and we were notified after 10 days that we'd won $245,600,000 MILLION DOLLARS from the NY LOTTERY POWERBALL that we played. We can't really explain the feeling we had when we heard the amount we WON for we were so happy. Everything seemed like a dream for some minutes till we realized that it was REALITY" LOL". Anyways, we are here to appreciate DR AMBER and also to share to you all the wonderful experiences we had with him. To get his contact info, Visit: amberlottotemple.com or E-mail: amberlottotemple@yahoo.com

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  36. Believe it or not Dr Amber has come to stay to do wonders with his spells. I overheard my co-worker telling his cousin how Dr Amber helped him get back his partner within 24 hours . I was amazed about what he said. I searched for this man called Dr Amber online and guess what... He had so many good reviews online about his work. I got in contact with him to win the lottery and he assured me that winning the lottery is not a problem but what do I intend doing with the winnings. I told him what I will do when I become a winner. Dr Amber prepared a spell and prayed for me for 3 days before he told me where to play the Lottery. I did as he instructed me with a positive mindset. To my greatest shock, I was announced the winner of $1,000 dollars everyday for life which is equivalent to a cash prize of $7,000,000 million dollars.. I have no words to thank Dr Amber but to share your good works to everyone that needs help. Visit: amberlottotemple.com or Email: amberlottotemple@yahoo.com

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  37. I love playing the Lottery and I buy tickets every 2 weeks after I get paid. I never wanted to get greedy but I did want enough to live more comfortably. Generally, my luck is pretty terrible. I took a chance when I found a website called [ amberlottotemple.com ] that offers spells to help people. It was the best £415 Pounds I have ever spent! I had to save up for a couple of weeks to be able to afford the spell. I had the spell targeted towards the National Lottery. I heed to DR Amber instructions to buy the ticket after 3days and have faith that I would be the winner. I kept my faith very strong just as DR Amber told me to do. The next morning I got up and saw an email from the National Lottery saying, "Good news, you've won a prize". Today my wife and I are proud winners of £184,262,899.10 Million Pounds. We are here to Appreciate the good deeds of DR Amber. You can reach out to him by Email____ amberlottotemple@yahoo.com

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  38. I bought a herbal medicine from Robinson buckler. I took the herbal medicine for 2 weeks and i went for a medical checkup and to my greatest surprise i was cured from Herpes. My heart is so filled with joy. If you are suffering from Herpes or any other disease you can contact this herbal doctor today on )To contact him, Write this ((Robinsonbuckler@yahoo.com))

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